haea.orgUS Hereditary Angioedema Association - HAEA -

Español ABOUT HAE What is HAE? Triggers Diagnosis Treatments Patient Stories RESOURCES For People with HAE For Those Newly Diagnosed HAE Cafe Portal ER Toolkit Find a Physician Clinical Trials Youth Resources Travel Pregnancy Patient Stories HAE and Aging -- For Healthcare Professionals Treatment Guidelines ER Toolkit Emerging Research -- US HAEA Angioedema Center CME -- Physician Database HAE Image Catalogue For Caregivers For Parents HAE Cafe Portal Clinical Trials ER Toolkit Compassion Fund -- GET INVOLVED Advocate Donate Fundraise Events Scientific Registry Youth Activities Volunteer Shop Join Us ABOUT US Mission Our Team Corporate Partners Impact Membership NEWS HAE Research HAEA Newsletters Our Announcements -- Media Kit CONTACT US An Important Message About COVID-19 Read More X Dear HAEA friends, The HAEA cares deeply about the wonderful people in our community, so please accept my sincere hope that you and your families are remaining healthy and safe during this unprecedented COVID-19 Coronavirus pandemic. These are challenging times, and in the midst of all that is happening, please know that you are not alone. The HAEA is here for you. Our HAEA team will continue working tirelessly to keep you informed on important HAE-related issues that may come up as our governments and health care systems fight the pandemic. You may be asking yourself whether having HAE increases the risk of contracting the coronavirus, having more complications, or developing a more severe case if infected. According to HAE physician Dr. Marc Riedl: At this time, we have no specific research or data regarding coronavirus and HAE. Based on our understanding of HAE, it is currently thought that HAE or the HAE-specific medications used to treat the condition should NOT cause increased susceptibility to contracting coronavirus infection, or increased severity of infection if the virus is contracted. We know that infections of any type may be a trigger for HAE attacks in some people. For this reason, it is important to make sure HAE medications are taken as prescribed and to keep prescriptions current. It is also vital that each person consider other non-HAE health conditions that may be specific risk factors of coronavirus and to follow ALL instructions from governmental and local health authorities. Contact your HAE physician if you have specific questions. As the pandemic continues to evolve, we will continue to offer relevant, trustworthy information on how to stay physically and mentally healthy. I encourage you to take some time and watch our recent webinars on this topic: COVID-19 Coronavirus Q&A with HAE physician Dr. Marc Riedl COVID-19 Coronavirus and Staying Healthy Mentally You can also stay up to date on the latest Congressional action regarding COVID-19 relief by Joining the HAEA and subscribing to our HAE In Action Newsletter. Let me emphasize that our HAEA Health Advocates are always available to answer any questions, provide information, or just lend you an ear to share your concerns. We are in this together! Please stay healthy and safe. Tony Castaldo US HAEA President & CEO DONATE HAVE HAE? START HERE CONQUERING HEREDITARY ANGIOEDEMA TOGETHER Welcome to the US Hereditary Angioedema Association, a non-profit advocacy organization serving people with Hereditary Angioedema (HAE) and their caregivers. HAE is a very rare and potentially life-threatening genetic condition involving swelling of various parts of the body, hands, feet or face. Our association is a community of people with HAE and their loved ones who are leading the fight in HAE research, advocacy, and finding a cure. Through a passionate commitment to the HAE community, we offer a wide variety of services and resources that further HAE education, clinical research, community engagement, access to medications, personalized patient support networks and a wide range of services to help people living with HAE lead a normal life. WE CONNECT THE HAE COMMUNITY. We deliver the latest HAE news and research advancements. We are your destination for the latest HAE information and resources. Previous Previous OUR MISSION To lead a nationwide advocacy movement that focuses on increasing HAE awareness and education, empowering patient access to suitable treatment, and fostering ground-breaking research that includes searching for a cure. OUR VISION Unrestricted access to therapy so people affected by HAE are unburdened by symptoms and able to experience life to the fullest. OUR VALUES To fulfill our community's highest priority needs with innovative programs, services, and activities that are delivered with an extraordinary level of empathy, kindness, and compassion. TAKE ACTION Your contribution helps fund our many programs and resources for people living with HAE and their loved ones DONATE Join our efforts to maintain a strong political advocacy presence on Capitol Hill ADVOCATE Get involved and help serve our community VOLUNTEER Participate in one of our many ongoing initiatives, or create your own! FUNDRAISE TAKE ACTION Educate medical staff about HAE GET AN ER TOOLKIT Create and host an event as a fun way to get involved and help educate your community about HAE CREATE AN EVENT Register as a patient or caregiver member of the HAEA JOIN US Participate in camps, activities and other youth events! JOIN THE YOUTH PROGRAM IN OUR OWN WORDS -- LINDA Living with HAE -- TAD Living with HAE -- ANGELA Living with HAE HAEA.org × The US Hereditary Angioedema Association 10560 Main Street, Suite PS40 Fairfax City, VA 22030 CONTACT AN HAE ADVOCATE: (866) 798-5598 DONATE JOIN HAEA Use of this site implies your agreement with our Terms of Use / Privacy Policies The US Hereditary Angioedema Association (HAEA) is a 501(c)(3) non-profit organization. © 2021 US Hereditary Angioedema Association The HAEA is a patient advocacy and research organization committed to actively engaging our community in a wide variety of grassroots activities that promote disease education and awareness. We provide personalized services to address the unique needs of HAE patients and their families, which include helping them secure access to and reimbursement for modern HAE medicines. Our great success in supporting clinical research has resulted in a variety of FDA-approved therapeutic options. We work closely with expert physicians to continuously upgrade the patient quality of life through improving diagnosis and knowledge of the disease, and encouraging a tailored, patient-focused use of available therapeutic options. The HAEA is product and company neutral, and continues to enthusiastically support drug discovery research aimed at the next generation of HAE therapies....