haea.orgUS Hereditary Angioedema Association - HAEA -

Español ABOUT HAE What is HAE? Triggers Diagnosis Treatments Patient Stories RESOURCES For People with HAE For Those Newly Diagnosed HAE Café Portal ER Toolkit Find a Physician US HAEA Angioedema Center Clinical Trials Youth Resources Travel Pregnancy Patient Stories HAE and AgingFor Healthcare Professionals Treatment Guidelines ER Toolkit Emerging ResearchUS HAEA Angioedema Center CME Physician Database HAE Image Catalog For Caregivers For Parents For Adults with HAE HAE Café Portal Clinical Trials ER Toolkit Caring for Caregivers Compassion FundReimbursement Guidebooks Guide For Women with HAE Shared Decision Making Tool HAE TrackR GET INVOLVED AdvocateAdvocate Grassroots Advocacy Network hae day :-) Donate Fundraise Events Scientific Registry Clinical Trials Youth Activities Volunteer Join UsMission Our Team Corporate Partners Impact Membership NEWS HAE Research Our Announcements HAEA Newsletters Community Blog Media Kit SHOP Shop HAEA Gear CONTACT US DONATE HAVE HAE? START HERE CONQUERING HEREDITARY ANGIOEDEMA TOGETHER Welcome to the US Hereditary Angioedema Association, a non-profit advocacy organization serving people with Hereditary Angioedema (HAE) and their caregivers. HAE is a very rare and potentially life-threatening genetic condition involving swelling of various parts of the body, hands, feet, or face. Our association is a community of people affected by HAE and their loved ones who are leading the fight in HAE research, advocacy and finding a cure. Through a passionate commitment to the HAE community, we offer a wide variety of services and resources that further HAE education, clinical research, community engagement, access to medications, personalized support networks, and a wide range of services to help people living with HAE lead a normal life. Previous Previous OUR MISSION To lead a nationwide advocacy movement that focuses on increasing HAE awareness and education, empowering access to suitable treatment, and fostering ground-breaking research that includes searching for a cure. OUR VISION Unrestricted access to therapy so people affected by HAE are unburdened by symptoms and able to experience life to the fullest. OUR VALUES To fulfill our community’s highest priority needs with innovative programs, services, and activities that are delivered with an extraordinary level of empathy, kindness, and compassion. TAKE ACTION Your contribution helps fund our many programs and resources for people living with HAE and their loved ones DONATE Join our efforts to maintain a strong political advocacy presence on Capitol Hill ADVOCATE Get involved and help serve our community VOLUNTEER Participate in one of our many ongoing initiatives, or create your own! FUNDRAISE TAKE ACTION Educate medical staff about HAE GET AN ER TOOLKIT Create and host an event as a fun way to get involved and help educate your community about HAE CREATE AN EVENT Register as a patient or caregiver member of the HAEA JOIN US Participate in camps, activities and other youth events! JOIN THE YOUTH PROGRAM IN OUR OWN WORDS ASHNA Living with HAE RICHARD Living with HAE KEMMI Living with HAE HAEA.org × The US Hereditary Angioedema Association 10560 Main Street, Suite PS40 Fairfax City, VA 22030 CONTACT AN HAE ADVOCATE: (866) 798-5598 DONATE JOIN HAEA Use of this site implies your agreement with our Terms of Use / Privacy Policies The US Hereditary Angioedema Association (HAEA) is a 501(c)(3) non-profit organization. © 2024 US Hereditary Angioedema Association The HAEA is an advocacy and research organization committed to actively engaging our community in a wide variety of grassroots activities that promote HAE education and awareness. We provide personalized services to address the unique needs of people with HAE and their families, which includes helping them secure access to and reimbursement for modern HAE medicines. Our great success in supporting clinical research has resulted in a variety of FDA-approved therapeutic options. We work closely with expert physicians to continuouslyThe HAEA is product and company neutral, and continues to enthusiastically support drug discovery research aimed at the next generation of HAE...